Monday news

Today I had a meeting with the doc. He outlined treatment recommendations. We're still waiting on some labs to finalize it all. He's doubling up treatments on me in consideration of our limited time. He is simultaneously addressing the root of my health problems as well as specific symptom relief.

I did my first neural therapy today. It was excruciatingly painful involving about 50 injections mostly in my stomach, some in the lymph nodes of my neck. I'm not afraid of needles and am not typically bothered by them, but two people injecting your stomach countless times HURTS!! My stomach looks like a pin cushion. Not kidding.

For those interested in what this is:
http://www.drkaslow.com/html/neural_therapy.html

No resolution on the picc. I'm hoping for tomorrow. If we don't have a replacement or fix lined up very soon, I am going to the ER to have it pulled. I'm not sure how many of my current symptoms are a result of this since they all overlap- fever, dizziness, fatigue, pain, nausea.... Symptoms of picc infection AND Babesiosis etc. When my gut feeling is no more waiting on this, I'll be in the ER. I hope we can find a doctor to work with tomorrow. My prayer is pull the picc (painlessly!) install a port and no problems with insurance coverage-tomorrow!

I got a new diagnosis today: Cytomegalovirus infection. My labs were off the highest reference point on the chart. Normal should be below 0.99. Test range goes to 5. My level is >5, but we don't know if it's 6 or 76. Either way, Dr V said this is a big player here and is every bit as important to address as Lyme and co-infections.

Other concerns are: liver enzymes are worse than the last (also bad) results. Killer T cells are extremely low allowing opportunistic infections to take advantage and overwhelm me.
Candida labs are really high. Lots of more minor issues...

I am overwhelmed and feel about as bad as I ever have the past 3 days.
Luckily, I have my sweet nieces to come "home" to. The picture below is Layla. She and Thomas play quite well and he has started calling her "Baby." Now, he has an Oregon and a Kansas "Baby!"